I would like to know if anyone knows of any foundations that help a child who has Neurofibromatosis?

Hello my name is Edgar, and my best friend's little boy who is just turning 3 years old got diagnosed with Neurofibromatosis, and I would like to know if anyone can give any information of help about this, or as to who we might be able to go to that they help children with this and might not charge, I have heard about a foundation in Dallas, but I would like to get as much information as possible, and most possibilities as other foundations who can help, since I want to do everything that is possible to help, if any information or if anyone knows about who I can contact in a foundation about information for help for my friend's little boy I would really appreciate this, you can post information on this question, or email me any information to my email address of pinksnicker007@yahoo.com, thank you for looking at this, and would appreciate all the help or information we can get, thank you again